Last year i posted about Orion Strong's fight against AML Leukemia. On Saturday, June 15th 2013, 14 year old Orion Strong was diagnosed with AML , a rare type of leukemia, with long treatments and many expenses. Orion is the son of Kharma Strong, (Truth, Love and Light Tribe) one of my online friends and a member of the online crafting community that i have been apart of for many years.
After four successful rounds of chemo and complete remission for five months, Orion went to his six month check up to learn that his white blood cells are super low again or "neutropenic". His heart check also showed signs of weakness from the prior chemo. On May 19th he was readmitted into UCSF, where he was an inpatient for several months for chemotherapy. The chemo after relapse was unsuccessful and the leukemia has been very aggressive.
14 Months and 3 days after being diagnosed with AML leukemia, 15 year old, Orion Strong has a life threatening fungal infection and refractory leukemia. Today, he has decided to discontinue his treatment and leave the hospitals care, so that he may live out his days at home, finding peace.
Orion is at home now is his newly renovated cottage. He is still in need of a few things. He would like a small fridge, a rug, curtains and a few other decoration things. You can donate directly at http://www.youcaring.com/medical-fundraiser/orion-strong-leukemia-fund/180898 and read more about his fight.
Orion's 16th birthday is coming up in September. His family is holding an auction fundraiser on Sept 6th in Graton California. Please spread the word!
Let's help make it the best birthday ever!! Orion loves soft and fuzzy things, glow in the dark stuff, nerf guns, cool swords and random toys. He could also use some e-gift cards for Barnes & Noble and Target.
Ecards can be sent to truthloveandlighttribe@gmail.com
Cards and packages can be sent to
Orion Strong
PO BOX 12
Guerneville, CA 95446
Please show your support for this amazing young man and his beautiful family. There are many ways you can help.
You can join Hope For Orion facebook page and share your supportive messages of love and healing on his wall.
You can share the page and help spread the word. You can donate directly through the Youcaring fundraiser page. You can send cards, gifts and ecards to addresses posted above.
i have been following Orion's Journey from the beginning. i have Hope for Orion. I truly do believe in the power of love. i believe in magic and miracles. Since coming home his white blood cells which have been at 0 for months miraculously rose to 180! He has stopped fevering and has been eating very well, considering he has only been off IV nutrition for a few days. All of the love, support and positive energy he has been receiving has really helped to keep his spirits up, which helps his body to stay strong. Anything that we can do to help show this family some love is very appreciated.
Please help make Orion's 16th birthday the most amazing birthday ever!! Please spread the word! Thank you!
0 comments:
Post a Comment