Thursday, October 13, 2016

Let's make Kyla's 19 Birthday unforgettable!

Kyla is an amazing young local teen who is currently waiting for a heart transplant. i met Kyla's mother many years ago through a mutual friend, and have been following Kyla's story ever since she first became sick. What was thought to be pneumonia in an otherwise healthy teen, turned out to be much more. When the pneumonia didn't get better, she underwent many more tests and was eventually diagnosed with heart failure caused by the genetic disease Emery Dreifuss Muscular Dystrophy

 She was just turning 18 and ready to start her life, when her entire world was turned upside down
You can follow  Kyla's Journey on her Facebook page. Kyla's Punk Pill-grimage.
Kyla is a huge fan of RuPaul’s Drag Race,  so when she first became hospitalized, she made a poster asking any and all drag queens to come visit her at Duke University Hospital, where she hopes to receive a new heart.  The story got national attention. :)

Kyla has spent the last year in and out of the hospital. She is officially on the transplant list and has spent the last 4 months hospitalized and undergoing several procedures to keep her alive until a suitable heart can be found.  In eight days, on October 20, Kyla will turn 19 years old.  They are planning a birthday celebration (with plenty of purple!)  at Duke hospital.

Kyla loves mail and welcomes birthday wishes. If you’d like to send her something, her mailing address here at the PCICU is: 

Kyla Rose Robbins
Duke University Hospital 
Unit 4200
2301 Erwin Rd.
Durham, NC 27710

Kyla has purple hair and also loves all things purple.  You can show your support for her by posting a picture of yourself wearing purple on instagram with the hashtag #purpleforkyla

There is also a gofundme set up by a family friend to help with every day expenses, while she is hospitalized. You can read more about her journey and the updates by her mother on the gofundmepage.

Lets flood the hospital with cards and gifts to make Kyla's Birthday unforgettable!! Please share this post and help me spread the word!